de-bi

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Join Our Pilot

We reconnect you with your donated biosamples,

Because nobody deserves to know, more than you.

When de-identified tissue is used for research, patients have no way to learn about or benefit from those findings. Our technologies empower patients to remain connected to all past and future research on their biosamples.

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De-bi

"Ownership of the human body is decentralized"
De-bi (short for “decentralized biobank) is a tool to help you track and learn about any of your biological specimens that were collected and stored for research.
The last time you went to the doctor, you may have signed a form agreeing to participate in research. Sometimes, your biological specimens, like blood, urine, biopsies, or samples from surgery, end up in research studies. Have you ever wondered what happened to that stuff?
Initially, we can enable current/former patients at University of Pittsburgh Medical Center (UPMC) to track their biosamples, but anyone can sign up to request the service.
Over time, we hope to allow you to find your samples that are “banked” at any institution– wherever you received medical care. Join our waitlist and add your institutions (hospitals, universities) where we should look next.

Background

Patient identity is stripped from the tumor/tissue they donate for research

This process makes research easier, but it also decreases the quality of data and prevents direct translation of research into clinical care.

The Importance of Precision Medicine

Precision Medicine uses information about a person's own genes or proteins to prevent, diagnose, or treat disease

A practical application of this, as it relates to donated tissues, is the use of targeted therapies to treat specific types of cancer cells.

Now more than ever, research findings are more relevant, and could provide immediate benefits to the person who donated them and their family members. Unfortunately there was always a disconnect that prevented researches from sharing these insights directly...UNTIL NOW

De-Identification

While we expect current de-identification of data to protect patients, it ultimately de-personalizes patient's contributions to the biobank, removing their name and their ability to learn about or benefit from the research on their tissues.

SOLUTION

From consent to consensus, and how we get there

Our scalable, NFT-backed ecosystem will reveal the richness of active research collaborations in which patients’ tissues are being leveraged in research protocols.

  • Tokenize Informed Consent

    Informed consents are forms that patients previously signed when they agreed to participate in existing biobank protocols.

    Upon verifying your prior consents, we mint a token with digital artwork which is derived from the form itself, firmly establishing the relationship between the biobank and its donors via a permanent and transparent, yet encrypted and privacy preserving transaction on the blockchain.

  • Access Key

    This utility token confers a right for patients to 'unlock' more information about their participation in the biobanking protocol, including information about the samples they’ve contributed, how they were used, and the outcomes of that research.

  • Community Action

    Further, patients are able to network and build community with each other, empowering the collective in addition to providing individual support. Our system provides opportunities for patients to self-organize and form cohorts around their research questions, which can then be used to “recruit” a researcher and create a formal study. This offers patients an avenue to have their values and priorities recognized by the research enterprise, and offers institutions an avenue to learn from yet unused samples.


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Heny is working with the University of Pittsburgh to explore commercialization of the technology related to this project. Find out more atHeny.co