Living to See Our Kids Grow Up

One day, when my little ray of sunshine was about two, I was happily reading to her in my lap. She brushed my chest and I felt an odd pain. I decided to check it out and got a biopsy the next day. It was stage II breast cancer....

The Feminist Ethic of Re-membering

I was inspired to donate tissue samples, derived from my mastectomy, by the idea of contributing to scientific investigation generally. I was especially invested in the opportunity to...

WHAT HAPPENED TO THE TUMOR, TISSUE, BLOOD, OR OTHER BIOSAMPLES YOU DONATED?

This morning, we extended an invitation to our project, and we are blown away by the response! We are so excited to have hundreds of you join us on this journey, and we’re working hard to get you on to the app so you can learn about your samples.

What role does justice play in biomedical research?

We can think of many examples of injustice in the history of biomedical research—the Tuskegee syphilis study, for example—where people were mistreated and harmed in the name of science. In Tuskegee, scientists were studying people...

Time Toxicity: A personal reflection on cancer diagnosis

During the last week of summer, I got invited by my colleagues to give a short speech about sharing our work on the development of a network platform to share removed tissue from operating rooms for the good of science. After the event...

“Is there anyone else out there like me?”

We didn’t know her yet, but we knew she was someone who understood what we’re trying to do. We could tell she was already informed on this topic, and we hoped that we would get the chance to talk to her...

"To me, it's all about knowledge"

October was an exciting time for de-bi. We've been building for several months and had finally launched the beta version of our patient-focused mobile app, de-bi. Of course we had to celebrate, so we threw an exclusive app download party with one of our favorite patient communities, 412 Thrive...