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April 24 Update: We made it to Round 2! Thanks so much to everyone who voted and commented. Let's keep it up, onto the Sweet 16!
Latest Blog Posts
Here’s what we’ve been up to recently.
Living to See Our Kids Grow Up
One day, when my little ray of sunshine was about two, I was happily reading to her in my lap. She brushed my chest and I felt an odd pain. I decided to check it out and got a biopsy the next day. It was stage II breast cancer....
The Feminist Ethic of Re-membering
I was inspired to donate tissue samples, derived from my mastectomy, by the idea of contributing to scientific investigation generally. I was especially invested in the opportunity to...
WHAT HAPPENED TO THE TUMOR, TISSUE, BLOOD, OR OTHER BIOSAMPLES YOU DONATED?
This morning, we extended an invitation to our project, and we are blown away by the response! We are so excited to have hundreds of you join us on this journey, and we’re working hard to get you on to the app so you can learn about your samples.
What role does justice play in biomedical research?
We can think of many examples of injustice in the history of biomedical research—the Tuskegee syphilis study, for example—where people were mistreated and harmed in the name of science. In Tuskegee, scientists were studying people...
Time Toxicity: A personal reflection on cancer diagnosis
During the last week of summer, I got invited by my colleagues to give a short speech about sharing our work on the development of a network platform to share removed tissue from operating rooms for the good of science. After the event...
“Is there anyone else out there like me?”
We didn’t know her yet, but we knew she was someone who understood what we’re trying to do. We could tell she was already informed on this topic, and we hoped that we would get the chance to talk to her...
"To me, it's all about knowledge"
October was an exciting time for de-bi. We've been building for several months and had finally launched the beta version of our patient-focused mobile app, de-bi. Of course we had to celebrate, so we threw an exclusive app download party with one of our favorite patient communities, 412 Thrive...
Press & Media
Here’s what we’ve been up to recently.
“Compared to the system that allowed Lacks’s cells to be used without her permission," Shapiro said, “blockchain technology using nonfungible tokens that allow patients to follow their samples may enhance transparency, accountability and respect for persons who contribute their tissue and clinical data for research.”
Pittsburgh Post Gazette
“At the end of the day, people’s lives could be saved [with] a pathway from the research lab back to the patient,” Gross points out. “And so that’s what we’re building.”
Medical Ethics Advisor
“The app serves as a platform for increased transparency of research activities and provides critical infrastructure for the return of research results that may inform healthcare decisions,” Hood explains.
NFT & Chill
"Why is everyone talking about healthcare in Web3? Marielle Gross MD is here to explain how blockchain can give individuals ownership of their medical records and save lives. Marielle also talks about using Soulbound Tokens and the future of healthcare in Web3. Sit back, chill and enjoy the conversation!"
"Bringing patients into the fold as true stakeholders in research allows for increased trust, transparency, and participation in biomedical research..."
"We’re re-framing research participation as membership in an investment collective, a token-based decentralized autonomous organization pooling bio-assets that positions patients as co-investigators...”
JOINING FORCES 13TH ANNUAL CONFERENCE
"Your tissue, your choice: A new approach to empower survivors, thrivers, and previvors as stakeholders in research on their tissue”
"...the potential role of blockchain [technologies] and how they can address these fundamental disconnects in our healthcare system and how we treat people."
“Our ownership of our physical selves is profound and universal, but it does not yet extend into the digital realm.”